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'Step over your own shadow and work together'- Hans Bart

02-10-2020

Vanaf 2017 organiseert het Linnean Innitiatief bijeenkomsten. In het begin stond het samenkomen in werkgroepen centraal. De werkgroepen komen momenteel op andere momenten samen. Lees meer over werkgroepen hier. Daarnaast organiseert het Linnean initiatief landelijke netwerkbijeenkomsten waar een bepaald thema centraal staat en gaan we op werkbezoek bij organisaties. Centraal staan dan de activiteiten van die organisatie op het gebied van waardegedreven zorg.  

 

 

Landelijke netwerkbijeenkomsten 

24-10

Washington

Seminar Uitkomstinformatie voor samen beslissen

 

 

14-12

Den Haag

Terugkomdag VWS

 

 

 

10-04

Nieuwegein

Start werkgroepen + programma Uitkomstgerichte Zorg

 

 

14-06

Maasstad

Praktijkvoorbeeld Cordaan en samenkomst werkgroepen.

 

 

02-10

UMC Utrecht

Werkgroepen, WG Data/ IT + programma Uitkomstgerichte Zorg.

 

 

 

17-01

La Vie, Utrecht

Onderweg naar generieke PROM - WG PROMs, WG Evaluatie en SAZ/ Value2Health voorbeeld: Waardegedreven zorg: gewoon beginnen!

 

 

20-06

Jaarbeurs, Utrecht

PROMIS, IBDream, SpA-Net, itembank, OLVG, Hartwacht, Programma Uitkomstgerichte zorg.

 

 

21-11

Mammoni, Utrecht

Generieke PROMs: menukaart, ICHOM Overall Adult Health, generieke PROMs in de spreekkamer.

 

 

 

05-03

Mammoni, Utrecht

Datavisualisatie/ gebruik dashboard in de spreekkamer: Erasmus, Isala, Ziektelastmeter, Xpert Clinic.

 

 

18-06

Studio, Amsterdam

Data en IT ten behoeven van Samen Beslissen. Voorbeelden: Old en new power, FAIR principes, Health RI.

 

24-09

Studio, Amssterdam

Van registreren van data naar meervoudig gebruik: ervaringen van koplopers. Voorbeelden: LROI, DICA, KNGF, NFK.

 

28-10

Studio Amsterdam

'High Value Care and Corona - Uncertainty as the New Normal'. Voorbeelden: Klinisch leiderschap, Nierpatiënt, meten data / traige OK Erasmus MC, samenwerking ROAZ, UMCG/ patiënt, PFN / patiënt

 

03-12

Studio Enschede

Waardegedreven zorg vereist waardegedreven bekostiging. Angst en depressiezorg (Menzis, Arkin/ Punt P), CVA-zorgbundel (Zilveren Kruis, Revalidatie Rijndam, VV&T instellingen).

 

 

04-03

Bericht Digitale bijeenkomsten  bekijken

Studio Woerden

Patiëntenparticipatie écht centraal zetten, hoe dan?

 

27-05

Ga naar het item 'De (meer)waarde van PREMs voor waardegedreven zorg: een (r)evolutie' - webcast 27 mei 2021

Webinary Amersfoort

De (meer)waarde van PREMs voor waardegedreven zorg: een (r)evoluatie

 

30-09

Bericht Webcast 'Waardegedreven zorg met uitkomsten én kosten' - de antwoorden op uw vragen bekijken

AVEX studio's
Utrecht

Waardegedreven zorg met uitkomsten én kosten

 
 

25-11

Fabriq Media Group Amsterdam

Teams als hoeksteen van waardegedreven zorg

-Webcast
-Verslag

 

 

 
 

 

2023
 
23-11

Barreta Media

Sturen op patiëntwaarde
Dagvoorzitter Angelique Weel
Side-kick: Matthijs van der Linde

Kernpunten sturen op uitkomsten én kosten
Sprekers: Sjoerd Repping, Esmee van der Poort, Mariska Hackert

Praktijkvoorbeelden sturen op uitkomsten uitgezet tegen kosten
Sprekers: Gijs van Steenbergen, Jaco van der Kooij, Mariska Hackert

Praktijkvoorbeelden van sturen op patiëntwaarde
Sprekers: Edwin de Beurs, Jean-Bart Bügel, Wilbert van den Hout

-Webcast
-Dia's
-Antwoorden

 

Werkbezoeken

Werkbezoeken

24-05-2019

Amsterdam

OLVG | uitkomsten set, PROMs/ PREMs, inkoopmodellen, kosten, zorgpad bouwen.

 

27-09-2019

Breda

AvL/ NKI ism Amgen. Santeon met voorbeeld vergelijken data, Vertrouwen als smeerolie en uitkomstenset en kostendragermodel.

 

10-09-2020

Studio, Eindhoven

Catharina ziekenhuis | Waardegedreven zorg als medicijn. Meten en verbeteren van uitkomsten, netwerkorganisatie in eerste, tweede en derde lijn, inkoopmodellen.

 

19-01-2021

Studio, Meppel

Zorgverlener en patiënt reflecteren op waardegedreven zorg in Isala – digitaal werkbezoek

 

11-02-2021

Bericht Waardegedreven zorg: van droom naar werkelijkheid - werkbezoek Santeon 11 februari 2021 bekijken

Studio, Woerden

Santeon: 'Van droom naar werkelijkheid '

 

12-10-2021

Erasmus MC Rotterdam

'Organisatiebrede waardegedreven zorg in het Erasmus MC'

 

16-02-2023

LUMC

Patiëntgericht en efficiënt: zorg van waarde 

 

25-05-2023

Bericht Inspiratie uit de ouderenzorg over waardegedreven zorg - verslag online Werkbezoek Archipel bekijken

Archipel Zorggroep

Waardegedreven ouderenezorg

 

08-09-2023

Erasmus MC

Geen woorden'  maar waarde

 

22-09-2023

Voorvertoning van afbeelding

St. Antonius

Waardegedreven zorg verbeteren door zorgketens
Gepresenteerde dia's: 

 

 

 

Rondetafels

Meten naar aantoonbaar verbeteren

24-11-2020

Online

Verkennen wat we kunnen doen met elkaar > ahv Knoster model sessies organiseren

 

16-02-2020

Online

Element: Competenties

Extra documenten:
-White paper: Mijn team is top!
-Zelfscan Effectief lean team

 

13-04-2021

Online

Element: Plan van Aanpak

 

07-09-2021

Online

Element: Visie/ Missie

 

 

Hans Bart, programme leader in outcome-based healthcare at Netherlands Patients Federation (PFN) talks more about his experiences and mission and gives examples of involving patients in the healthcare for tomorrow.

Hans Bart is one of the speakers at the international Linnean webcast 'High Value Care and Corona: Uncertainty as the New Normal on October 28th. Register for the webcast: https://www.linnean.nl/Beheer/Formulierenmodule/1760020.aspx?t=Registration-form-webcast-28-oct-2020

How did you come into contact with outcome-based healthcare?

Twenty years ago, when I was director at Volunteer Palliative Terminal Care Netherlands. Back then, we just didn't call it that. In patients who are in their final stages of life, quality of life and dignified dying is at the forefront, or: should be. At the Kidney Patients Association Netherlands (NVN) I continued to emphasize the importance of patient participation and the involvement of their experiences (nowadays PREMs) and their reported outcomes of care (PROMs). We started with people on dialysis, because there was already a good clinical record. Nowadays, there are more studies in nephrology about the selection process of kidney function replacement treatment (dialysis and transplantation), or choosing for no kidney replacement treatment. Always in combination with  clinical outcomes and PROMs and patient value – “what is important to you?”. Ultimately, we want to extend the outcome  further to the stage for kidney failure (phase 3 and 4 of chronic kidney disease).

In the movie below you can see the dilemmas of patients who have to choose between  dialysis,  transplantation or conservative care. Also, the struggles of caregivers are displayed: what is the best care for everyone from a clinical point of view versus what is the best care for this  patient, appropriate to what is important to him. In this case, the patient has already had a transplantation in the past and does not want to do so again. In addition, the patient himself chooses the location of the dialysis. Not at home, but in a dialysis center of his choice but in charge of his own dialysis. All elements of outcome-based healthcare are beautifully displayed. Clinical outcome measures, patient wishes and preferences are elements that come back in the process of shared-decision making. The result is the best appropriate treatment for that patient.

What are you doing right now?

A year ago I deliberately took a step back as director of the NVN. Currently I work three days a week as project leader in outcome-based healthcare within Netherlands Patient Federation (PFN) and one day I work for NVN on a number of projects in the field of outcome-based healthcare (Santeon and UMCG). In addition, I will soon start developing a module for carers in the choice aid www.nierwijzer.nl. This is an elective aid based on the experiences of patients who show in movie fragments in a structured way the effects of all forms of treatment (nine forms) on nineteen subjects. The informal care module, which is built in the same way, is added to this. After all, kidney disease has a big impact on the whole family.

What's your mission?

My mission is twofold. On the one hand, I am committed to the emancipation of the patient (and the patient movement). I wrote a book about this three years ago: 'How are you?'. In this book I also point at other emancipatory movements, for instance  the movement within mental health care. The patient movement in the mental healthcare  has been a pioneer in this respect before. We're on our way with patient emancipation, but we're far from there! It has its own dynamics and development in time. It's a dot on the horizon: supporting patients in expressing what's important to them. And also support caregivers to be candid and invite patients to enter the conversation together. Dialogue is paramount, just as emancipation is always a two-way street.

In addition, I hope that with PROMs it’s possible to discuss topics that were not discussed in the consultation room until recently, such as sexuality within nephrology. That these topics gets a place somewhere in the care process. Whether this is with the nephrologist, the nurse or another healthcare provider, it doesn't matter. That we connect actions to the insights we gain. It is therefore not a matter of collecting more and more  data with each other, but of combining the relevant clinical parameters with the PROMs and using them in the dialogue of shared decision-making. In this way, we can contribute to the creation of conditions to improve the quality of life of the patient. We are on our way to this  at the end of 2022, when the programme expires. But there is a lot to be done in this ongoing process. We are taking irreversible steps together that must be prosecuted.

What is/was the influence of COVID-19?

Although we talk a lot about patient participation and to  shared decision making, in this time of COVID -19, it appears that this layer is very thin. We spoke in the Netherlands in March 2020 about crisis management and used  a military structure. As Patient Federation we had to knock on doors to be taken into account in all the guidelines, Black books, triage models, etc.  What’s important  to the patient? There was a lot of talk about the patient, rather than with the patient. The patient as an object and not a subject.  You also saw this in the decisions in nursing homes: there was hardly any discussion with the residents about what they thought was important and also the primary care providers were forgotten. People with limited life expectancy were isolated and a proper farewell was impossible for the dying.  With a possible second wave, hopefully this will be handled differently. You can also see that scaling down regular care should have been handled differently. Measures were taken too quickly and the long-term effects were barely taken into account. This is not only about people with (possible) cancer, but also about people who want to prevent deterioration through physiotherapy. Think, for example, of people with spinal cord injuries, with muscle diseases or with Parkinson's. Decline that often is irreversible . In the future,  shared decision making must be more embedded in the care we provide with each other.

Do you have an inspiring example/ person?

As director of NVN I have met many people in recent years. Patients with chronic kidney disease who have ups and downs, but give a lot of meaning to life. They add quality to their lives. The real stories of patients. Patients are the examples for me and for which I walk a faster.

What would you like to give others?

The Dutch healthcare is very complex and there are many interests for all parties. Step over your own shadow and work together. This is in the patient's best interest. This way we can improve the healthcare for and with the patient. In addition, self-reflection is an important tool for learning. You can see this in caregivers who become patients themselves. They're going to look at the profession in a different way. Everyone learns from it. Dare to put yourself in that position.

What do you think the future of healthcare looks like?

In the future, we will have more dialogue with each other in the doctor's consultation room. The patient dares to say more about what matters to him. The healthcare provider is more coaching based on his expertise and skills. This also makes it more fun for the healthcare professional. In addition, the quality lies in the interaction between patient and caregiver. We're definitely going down this road together. The outcome-based Care programme 2018-2022 contributes to this in its full breadth, including the IT line. We will jointly make meters and hold this after 2022.

Contact

Hans Bart – Programme Manager Outcome-Oriented Care Patient Federation Netherlands – h.bart@pfn.nl

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